Thanks again to our newest NF heroes

 

These sponsors helped us raise $2,640 for The Children’s Tumor Foundation:

 

Mr. Jeff Scheller

Ms. Florence Anne Kohut

Mr. Aiden Long

Mr. and Mrs. Bruce C. Neary

Mr. and Mrs. John H. Oostdyk

Mr. Albert J. Stahl

Mr. and Mrs. Robert H. Speight

Mr. Roy Larsen

Mr. and Mrs. Bruce V. Koczman

Mr. and Mrs. James W. McCombs

Mr. Richard D. Kroll

Mr. Greg Cambeis

Ms. Kathleen Sommers

Ms. Katy Laundrie

Ms. Amy Zambrano

Mr. and Mrs. Richard Gifford

Mr. Rob Moll

Mr. Gary Gnidovic

Mr. and Mrs. Dan Carver

Mr. Richard Heffner

Ms. Dee Lamorte

Ms. Judy Scheller

Mr. and Mrs. Philip Benyola

Ms. Heidi Peck

Mr. and Mrs. Carleton W. Westerlund

Ms. Cherie Carl

Mr. and Mrs. Nicholas P. San Filippo

Mr. and Mrs. Robert A. Mack, Sr.

Mr. and Mrs. John J. Bogosian

Mr. and Mrs. Roger L. Faulkenbury

Mr. and Mrs. James J. Jensen

Mr. and Mrs. Michael Trapani

Mr. and Mrs. Mark Smith

Ms. Sara Mummolo

Dr. and Mrs. Gary S. Cuozzo

Mr. Tony Papalia

 

 

Here is the summary of another study that I’ll be including in my letter to The Children’s Tumor Foundation to encourage them to better educate and support families in regard to ALL possible outcomes of this debilitating disease.

NF1: Psychiatric Disorders and Quality of Life Impairment

Neurofibromatosis type 1 (NF1) is often associated with psychiatric disorders, which are more frequent in NF1 than in general population (33% of patients). Dysthymia* is the most frequent diagnosis (21% of patients). There is also a high prevalence of depressive mood (7%), anxiety (1-6%), and personality (3%) disorders. The risk of suicide is four times greater than in the general population. Bipolar mood disorders or schizophrenia appear to be rare. The impaired quality of life associated with NF1 may play an important role in the development of psychiatric disorders. Quality of life assessments may help to identify a population at high risk.

*Dysthymia — depression; despondency or a tendency to be despondent

Thanks again friends! May your generosity be returned a hundred-fold!

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3 Comments on “Thanks again to our newest NF heroes

  1. It’s an honor to be on the list. I pray the money will help find a cure!
    Cherie

  2. Cherie,

    Thanks so much! We met some inspiring patients and parents at the marathon and will keep up with their work. Many blessings~

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